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#23andme

2 posts2 participants0 posts today
Public
Brian Greenberg

⚠️ Genetic privacy alert: 23andMe’s bankruptcy puts your DNA data at risk 🔬📉

With user data now part of potential asset sales, EFF is urging all customers to act now:

🧬 Download your data — store it securely for personal use
🗑️ Delete your account + data — this includes reports, raw data, and family tree connections
❌ Revoke research consent — and explicitly request sample destruction

Why it matters:
• DNA reveals more than identity — it exposes health, ancestry, and family connections
• The data doesn’t just belong to you — it can implicate relatives who never opted in
• A new owner might not respect your privacy

Take control now. Your genes deserve better security than a bankruptcy fire sale.

#Privacy #DNA #DataRights #CyberSecurity #23andMe #DigitalRisk #security #privacy #cloud #infosec

eff.org/deeplinks/2025/03/how-

Electronic Frontier Foundation · How to Delete Your 23andMe DataThis week, the genetic testing company 23andMe filed for bankruptcy, which means the genetic data the company collected on millions of users is now up for sale. If you don't want your data included in any potential sale, it’s a good time to ask the company to delete it.
Public
PrivacyDigest

#Congress Moves Closer to Risky Internet #Takedown Law | EFFector 37.4

This edition of EFFector explains how you can help us push back against the TAKE IT DOWN Act, an internet #censorship law; why we oppose site-blocking legislation, found in two upcoming bills; and how to delete your data from #23andMe.
#rights #takeitdownact #siteblocking #privacy

eff.org/deeplinks/2025/04/cong

Electronic Frontier Foundation · Congress Moves Closer to Risky Internet Takedown Law | EFFector 37.4Sorry, EFF doesn't hand out candy like the Easter Bunny, but we are here to keep you updated on the latest digital rights news with our EFFector newsletter!This edition of EFFector explains how you can help us push back against the TAKE IT DOWN Act, an internet censorship law; why we oppose site-...
Public
JL Johnson :veri_mast:

I'm a little late to the party because I wanted to download my raw data and had to wait in line for that. The report finally came through today.

Dang, what a bummer. I happily paid $500 for my 23andMe way back in the day. It was such a cool idea.

All good things end, I guess...

We have received your request to delete your data and have sent an email to the email address linked to your 23andMe account requesting your confirmation. Please locate this email and confirm your request. Your data deletion request will not be processed until we have received your confirmation.
#23andme
Public
Benjamin Carr, Ph.D. 👨🏻‍💻🧬

#Genetic data repo #OpenSNP to self-destruct before authoritarians weaponize it
The reason, according to #bioinformatics researcher Bastian Greshake Tzovaras, one of the founders of the project, is the dissolution of genetic testing biz #23andMe and the potential weaponization of genetic data by #farright #authoritarian regimes.
theregister.com/2025/04/01/ope

The Register · Genetic data repo OpenSNP to self-destruct before authoritarians weaponize itBy Thomas Claburn
Public
Healthcare IT Security Robot

DATE: March 31, 2025 at 04:38PM
SOURCE: HEALTHCARE INFO SECURITY

Direct article link at end of text block below.

@FTC: @23andMe's Buyer Must Uphold Co.'s Data #Privacy Pledge t.co/IFNSWyTT6J #FTC #23andMe

Here are any URLs found in the article text:

t.co/IFNSWyTT6J

Articles can be found by scrolling down the page at healthcareinfosecurity.com/ under the title "Latest"

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Private, vetted email list for mental health professionals: clinicians-exchange.org

Healthcare security & privacy posts not related to IT or infosec are at @HIPAABot . Even so, they mix in some infosec with the legal & regulatory information.

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#security #healthcare #doctors #itsecurity #hacking #doxxing #psychotherapy #securitynews #psychotherapist #mentalhealth #psychiatry #hospital #socialwork #datasecurity #webbeacons #cookies #HIPAA #privacy #datanalytics #healthcaresecurity #healthitsecurity #patientrecords @infosec #telehealth #netneutrality #socialengineering

Public
Bastian Greshake Tzovaras

We have decided to sunset openSNP at the end of April. While triggered by the sale of #23andme, @PhilippBayer @i_dabble & I had been thinking about this for a while.

Ultimately, we think that it's the most responsible act of data stewardship given the state of the world. I've written a retrospective of the last 14 years of the project:

tzovar.as/sunsetting-opensnp/

a black and white photo of a person taking a photo out of car on the passenger-side, the person and camera are visible in the side-mirror
Bastian Greshake TzovarasSunsetting openSNP - a personal retrospective
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